Government of Canada Launches Pilot Project for Orphan Drugs
On August 6, 2014 the Government of Canada launched a new pilot project that will seek input from Canadians with rare diseases to inform future orphan drug reviews.
The work derived from this project will be incorporated into how patient input will be gathered once Health Canada implements its Orphan Drug Framework.
Drug manufacturers Hoffmann-La Roche Limited, and Hyperion Therapeutics Inc. are each offering a drug to be reviewed in the pilot project: